Homozygous Familial Hypercholesterolemia
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This fund is currently closed to new and renewal applications due to lack of sufficient funding. CPR allocates funding to all patient’s that are approved for a grant so that it is available when needed by the patient. Therefore, during the period that a fund is closed to new applications, CPR continues to provide support to all patients in those funds that have an active award. Funds reopen often so please continue to visit our Disease Fund page to check the status of the fund.
Fund Type
- Co-pay, Co-insurance & Deductibles
- Office visits and administration charges related to treatment
- Medical Insurance premiums
$3,000 Per Year
- Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
- Insurance Requirements All Insurance Types
- Must reside and receive treatment in the United States.
About Homozygous Familial Hypercholesterolemia
Familial hypercholesterolemia is a genetic disorder characterized by high cholesterol levels, specifically very high levels of low-density lipoprotein, in the blood and early cardiovascular disease. Homozygous Familial Hypercholesterolemia (HoFH) is a rare, but very severe form of an inherited disorder resulting from a genetic mutation on chromosome number 19. This mutation makes the liver incapable of metabolizing cholesterol, specifically low-density lipoprotein (LDL), resulting in very high LDL levels. The disorder leads to aggressive atherosclerosis, which if left untreated, causes individuals to experience heart attacks or death before age 30. Many patients with homozygous FH must undergo LDL apheresis on a regular basis. LDL Apheresis is a process by which blood is removed, LDL-C is filtered out, and then the person’s blood is returned to their body. It is similar to dialysis. This form of familial hypercholesterolemia occurs in about 1 in 160,000 to one million people worldwide.
- Acute Coronary Syndrome: Stroke and Heart Attack Prevention (Interactive Patient Resource developed by The FH Foundation, the Association of Black Cardiologists and Krames Staywell)
- American Academy of Pediatrics
- American College of Cardiology
- American Heart Association
- American Lung Association
- Familial Hypercholesterolemia
- Familial Hypercholesterolemia Diagnosis app for iPhone
- Familial Hypercholesterolemia Journeys
- Genes in Life (Find out more about the relationship between health and genetics)
- Genetics in Primary Care Institute (American Academy of Pediatrics)
- Global Genes Project
- Global Genes Toolkits
- International Familial Hypercholesterolemia Foundation
- Learn Your Lipids
- MEDPED – Make Early Diagnosis to Prevent Early Death
- Mended Hearts
- National Institutes of Health
- National Lipid Association
- National Society of Genetic Counselors
- PCSK9 Forum
- Preventive Cardiac Nurses Association (PCNA)
- WomenHeart
- CancerCare866-55-COPAY
- Good Days877-968-7233
- Healthwell Foundation800-675-8416
- National Organization for Rare Disorders800-999-6673
- Needy Meds800-503-6897
- Patient Access Network Foundation866-316-7263
- Patient Services Inc.800-366-7741
- The Assistance Fund855-845-3663
