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Homozygous Familial Hypercholesterolemia

Status
Closed

This fund is currently closed to new and renewal applications due to lack of sufficient funding. CPR allocates funding to all patient’s that are approved for a grant so that it is available when needed by the patient. Therefore, during the period that a fund is closed to new applications, CPR continues to provide support to all patients in those funds that have an active award. Funds reopen often so please continue to visit our Disease Fund page to check the status of the fund.

Fund Type

Co-pay, Co-Insurance & Deductible

Maximum Award Level

$4,500 Per Year

Eligibility Requirements
  • Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
  • Insurance Requirements All Insurance Types
  • Must reside and receive treatment in the United States.

About Homozygous Familial Hypercholesterolemia

Familial hypercholesterolemia is a genetic disorder characterized by high cholesterol levels, specifically very high levels of low-density lipoprotein, in the blood and early cardiovascular disease. Homozygous Familial Hypercholesterolemia (HoFH) is a rare, but very severe form of an inherited disorder resulting from a genetic mutation on chromosome number 19. This mutation makes the liver incapable of metabolizing cholesterol, specifically low-density lipoprotein (LDL), resulting in very high LDL levels. The disorder leads to aggressive atherosclerosis, which if left untreated, causes individuals to experience heart attacks or death before age 30. Many patients with homozygous FH must undergo LDL apheresis on a regular basis. LDL Apheresis is a process by which blood is removed, LDL-C is filtered out, and then the person’s blood is returned to their body. It is similar to dialysis. This form of familial hypercholesterolemia occurs in about 1 in 160,000 to one million people worldwide.

Homozygous Familial Hypercholesterolemia Resources
Medication & Financial Assistance Resources
The Patient Advocate Foundation's (PAF) Co-Pay Relief (CPR) Program does not review the information contained on the website links provided for content, accuracy or completeness. Use of and access to this information is subject to the terms, limitations and conditions as outlined on the accessed websites. PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided. The information presented on the PAF Co-Pay Relief website is provided for general information only and is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you acquire from this or any other website accessed through the PAF Co-Pay Relief program website.
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