Inherited or Acquired Lipodystrophy
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This fund is currently closed to new and renewal applications due to lack of sufficient funding. CPR allocates funding to all patient’s that are approved for a grant so that it is available when needed by the patient. Therefore, during the period that a fund is closed to new applications, CPR continues to provide support to all patients in those funds that have an active award. Funds reopen often so please continue to visit our Disease Fund page to check the status of the fund.Fund Type
- Co-pay, Co-insurance & Deductibles
- Office visits and administration charges related to treatment
- Medical Insurance premiums
$4,500 Per Year
- Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
- Insurance Requirements All Insurance Types
- Must reside and receive treatment in the United States.
About Inherited or Acquired Lipodystrophy
“Lipodystrophies are disorders of adipose tissue (fat) characterized by selective loss of fat from various parts of the body. There are several different types of lipodystrophies and the degree of fat loss may vary from very small depressed areas to near complete absence of adipose tissue.
The extent of fat loss may determine the severity of metabolic complications related to insulin resistance, such as diabetes mellitus and high levels of serum triglycerides. Some patients may have only cosmetic problems while others may also have severe metabolic complications. These disorders can either be inherited (familial or genetic) lipodystrophies or can be secondary to various types of illnesses or drugs (acquired lipodystrophies).
The following is a listing of the types of Lipodystrophy:
• Inherited: Congenital Generalized (CGL; Berardinelli-Seip Syndrome)
• Inherited: Familial Partial, Dunnigan Variety (FPLD)
• Inherited: Familial Partial, Mandibuloacral Dysplasia Variety (FPL-MAD)
• Inherited: Familial Partial, Kobberling Variety and Other Types
• Inherited: SHORT Syndrome
• Inherited: Neonatal Progeroid Syndrome (Wiedemann-Rautenstrauch syndrome)
• Progeria (Hutchison – Gilford syndrome)
• Atypical Progeria Syndrome
• Acquired: Generalized Lipodystrophy (AGL; Lawrence Syndrome)
• Acquired: Lipodystrophy in HIV infected Patients (LD-HIV)
• Acquired: Partial Lipodystrophy (Barraquer-Simons Syndrome)
• Acquired: Localized”
- The University of Texas Southwestern Medical Center
- Right Diagnosis
- National Organization for Rare Disorders800-999-6673
- Lipodystrophy United Resources209-845-7273
- National Institute for Advancing Translational Sciences/ Office of Rare Diseases Research /Genetic and Rare Diseases Information Center (GARD)888-205-2311
- National Institute of Health-Clinical Trial Center301-496-4121