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Inherited or Acquired Lipodystrophy

Status
Closed

This fund is currently closed to new and renewal applications due to lack of sufficient funding. CPR allocates funding to all patient’s that are approved for a grant so that it is available when needed by the patient. Therefore, during the period that a fund is closed to new applications, CPR continues to provide support to all patients in those funds that have an active award. Funds reopen often so please continue to visit our Disease Fund page to check the status of the fund.

Fund Type

Co-pay, Co-Insurance & Deductible

Maximum Award Level

$7,500 Per Year

Eligibility Requirements
  • Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
  • Insurance Requirements All Insurance Types
  • Must reside and receive treatment in the United States.

About Inherited or Acquired Lipodystrophy

“Lipodystrophies are disorders of adipose tissue (fat) characterized by selective loss of fat from various parts of the body. There are several different types of lipodystrophies and the degree of fat loss may vary from very small depressed areas to near complete absence of adipose tissue.

The extent of fat loss may determine the severity of metabolic complications related to insulin resistance, such as diabetes mellitus and high levels of serum triglycerides. Some patients may have only cosmetic problems while others may also have severe metabolic complications. These disorders can either be inherited (familial or genetic) lipodystrophies or can be secondary to various types of illnesses or drugs (acquired lipodystrophies).
The following is a listing of the types of Lipodystrophy:

Inherited
• Inherited: Congenital Generalized (CGL; Berardinelli-Seip Syndrome)
• Inherited: Familial Partial, Dunnigan Variety (FPLD)
• Inherited: Familial Partial, Mandibuloacral Dysplasia Variety (FPL-MAD)
• Inherited: Familial Partial, Kobberling Variety and Other Types
• Inherited: SHORT Syndrome
• Inherited: Neonatal Progeroid Syndrome (Wiedemann-Rautenstrauch syndrome)
• Progeria (Hutchison – Gilford syndrome)
• Atypical Progeria Syndrome

Acquired
• Acquired: Generalized Lipodystrophy (AGL; Lawrence Syndrome)
• Acquired: Lipodystrophy in HIV infected Patients (LD-HIV)
• Acquired: Partial Lipodystrophy (Barraquer-Simons Syndrome)
• Acquired: Localized”

Inherited or Acquired Lipodystrophy Resources
Medication & Financial Assistance Resources
The Patient Advocate Foundation's (PAF) Co-Pay Relief (CPR) Program does not review the information contained on the website links provided for content, accuracy or completeness. Use of and access to this information is subject to the terms, limitations and conditions as outlined on the accessed websites. PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided. The information presented on the PAF Co-Pay Relief website is provided for general information only and is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you acquire from this or any other website accessed through the PAF Co-Pay Relief program website.
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