Juvenile Idiopathic Systemic Arthritis
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This fund has been developed in response to patients who have contacted PAF for help with their medication expenses and could not find help. While this fund has been fully designed and we are ready to provide needed support to these patient communities, this fund is not yet able to accept applications for assistance as we are still working to secure charitable donations that will allow us to open it.
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Fund TypeCo-Pay, Co-insurance & Deductible (medications and office visits), Medical Insurance Premiums
Maximum Award Level$5,000 Per Year
- Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
- Insurance Requirements All Insurance Types
- Must reside and receive treatment in the United States.
About Juvenile Idiopathic Systemic Arthritis
Systemic Juvenile Idiopathic Arthritis (SJIA), is the rarest form of juvenile idiopathic arthritis, and it affects the entire body, including the joints. SJIA can occur any time during childhood, but it usually begins between the ages of 2 to 5, there is no known trigger for the disease. The most common presentation is a sudden onset of systemic inflammation symptoms that lasts at least two weeks including high recurring daily fever spikes, accompanied by a salmon-pink skin rash over the body, often occurring later in the evening before returning to normal. SJIA is associated with swollen lymph nodes, enlarged liver or spleen and sometimes inflammation of the lining of the heart or lungs. Unlike other forms of juvenile arthritis, joint problems may not develop until weeks after systemic symptoms appear, most commonly begin in the knees, wrists and ankles. The disease course is variable and can be just a single episode of illness, repeated bouts of illness, or in the worst cases, constant illness. Boys and girls are equally vulnerable, but accounts for 10 percent of the juvenile idiopathic arthritis cases. SJIA is considered to be an autoinflammatory disease.
Other Names for this disease include: Systemic juvenile idiopathic arthritis; Systemic onset juvenile rheumatoid arthritis; Still’s disease ; Still disease; Systemic polyarthritis; Systemic-onset JIA; Systemic-onset juvenile idiopathic arthritis.
- Arthritis Foundation
- Arthritis National Research Foundation
- Autoinflammatory Alliance
- Childhood Arthritis and Rheumatology Research Alliance (CARRA)
- Creaky Joints
- Healthwell Foundation/Pediatric Assistance Fund800-675-8416
- Individuals with Disabilities Education Act
- Juvenile Arthritis Fact Sheet
- Systemic Jia Foundation
- Systemic Onset Juvenile Idiopathic Arthritis
- UpToDate
- CancerCare866-55-COPAY
- Good Days877-968-7233
- Healthwell Foundation800-675-8416
- National Organization for Rare Disorders800-999-6673
- Needy Meds800-503-6897
- Patient Access Network Foundation866-316-7263
- Patient Services Inc.800-366-7741
- The Assistance Fund855-845-3663
