Mucopolysaccharidosis Type I
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Approved and Donation Ready
This fund has been developed in response to patients who have contacted PAF for help with their medication expenses and could not find help. While this fund has been fully designed and we are ready to provide needed support to these patient communities, this fund is not yet able to accept applications for assistance as we are still working to secure charitable donations that will allow us to open it.
If you, or someone you know, would like to contribute to this fund, please visit our Donors page for more information on how to provide critical support for patients in need.
Fund TypeCo-Pay, Co-insurance & Deductible (medications and office visits)
Maximum Award Level$6,500
- Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
- Insurance Requirements All Insurance Types
- Must reside and receive treatment in the United States.
About Mucopolysaccharidosis Type I
Mucopolysaccharidosis type I (MPS I) is a condition that affects many parts of the body. It is a progressively debilitating disorder; however, the rate of progression varies among affected individuals.
MPS Type 1 is divided into the severe or attenuated (diminished severity) types. MPS I is caused by mutations in the IDUA gene. These mutations lead to reduced levels or the complete lack of the IDUA enzyme. Without the proper amount of this enzyme, large sugar molecules called glycosaminoglycans (GAGs) accumulate within cells called lysosomes. This causes the lysosomes to increase in size, causing many different organs and tissues of the body to become enlarged. These materials remain stored in the body’s cells, causing progressive damage and lead to the medical problems seen in the condition. Severe MPS I occurs in approximately 1 in 100,000 newborns. Attenuated MPS I is less common and occurs in about 1 in 500,000 newborns. Other names for this condition include: Hurler-Scheie syndrome, Hurler syndrome, IDUA deficiency, MPS I, MPS I H, MPS I H-S, MPS I S, mucopolysaccharidosis I, and Scheie syndrome.
- CancerCare866-55-COPAY
- Good Days877-968-7233
- Healthwell Foundation800-675-8416
- National Organization for Rare Disorders800-999-6673
- Needy Meds800-503-6897
- Patient Access Network Foundation866-316-7263
- Patient Services Inc.800-366-7741
- The Assistance Fund855-845-3663
