Mucopolysaccharidosis VI

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Approved and Donation Ready

This fund has been developed in response to patients who have contacted PAF for help with their medication expenses and could not find help. While this fund has been fully designed and we are ready to provide needed support to these patient communities, this fund is not yet able to accept applications for assistance as we are still working to secure charitable donations that will allow us to open it.

If you, or someone you know, would like to contribute to this fund, please visit our Donors page for more information on how to provide critical support for patients in need.

Fund Type

Co-Pay, Co-insurance & Deductible (medications and office visits)

Maximum Award Level


Eligibility Requirements
  • Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
  • Insurance Requirements All Insurance Types
  • Must reside and receive treatment in the United States.

About Mucopolysaccharidosis VI

Mucopolysaccharidosis type 6 (MPS 6) is a lysosomal storage disease with progressive multisystem involvement, associated with a deficiency of arylsulfatase B (ASB) leading to the accumulation of dermatan sulfate.  These materials remain stored in the body’s cells, causing progressive damage, causing many tissues and organs to enlarge, become inflamed or scarred, and eventually waste away. Skeletal abnormalities are also common in this condition. Mucopolysaccharidosis type 6MPS VI is estimated to occur in 1 in 250,000 to 600,000 newborns. This is a progressive condition that causes many tissues and organs to enlarge and become inflamed or scarred. Skeletal abnormalities are also common in this condition. People with MPS VI generally do not display any features of the condition at birth. They often begin to show signs and symptoms of MPS VI during early childhood. The features of MPS VI affect many bodily systems, including skeletal, cardiac, and respiratory.  Skeletal abnormalities include a large head with a buildup of fluid in the brain, distinctive-looking facial features that are described as “coarse,” and a large tongue. Other skeletal features include short stature, joint deformities that affect mobility, and dysostosis multiplex, which refers to multiple skeletal abnormalities seen on x-ray. People with MPS VI may develop a narrowing of the spinal canal (spinal stenosis) in the neck, which can compress and damage the spinal cord.  Cardiac problems in people with MPS VI typically includes heart valve abnormalities. Respiratory abnormalities in this condition may involve the airway becoming narrow, which leads to frequent upper respiratory infections and short pauses in breathing during sleep (sleep apnea).  Other names for this condition include: Arylsulfatase B deficiency, Maroteaux-Lamy Syndrome, MPS VI, MPS6, Mucopolysaccharidosis VI,  and Polydystrophic Dwarfism.

Mucopolysaccharidosis VI Resources
Medication & Financial Assistance Resources
The Patient Advocate Foundation's (PAF) Co-Pay Relief (CPR) Program does not review the information contained on the website links provided for content, accuracy or completeness. Use of and access to this information is subject to the terms, limitations and conditions as outlined on the accessed websites. PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided. The information presented on the PAF Co-Pay Relief website is provided for general information only and is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you acquire from this or any other website accessed through the PAF Co-Pay Relief program website.