Sickle Cell Disease Health Equity Fund

Co-Pay Relief Program Fund Notices

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Health equity identified need

Approved and Donation Ready

This fund has been developed in response to patients who have contacted PAF for help with their medication expenses and could not find help. While this fund has been fully designed and we are ready to provide needed support to these patient communities, this fund is not yet able to accept applications for assistance as we are still working to secure charitable donations that will allow us to open it.

If you, or someone you know, would like to contribute to this fund, please visit our Donors page for more information on how to provide critical support for patients in need.

Fund Type

Co-Pay, Co-insurance & Deductible (medications and office visits), Medical Insurance Premiums

Maximum Award Level

$10,000 Per Year

Eligibility Requirements
  • Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
  • Insurance Requirements All Insurance Types
  • Residency RequirementsMust reside in an eligible county
    Must receive treatment in the United States
    Is my zip code eligible for Health Equity Funds?

About Sickle Cell Disease Health Equity Fund

Sickle cell disease is a group of inherited disorders that affect red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin*S, an abnormal type of hemoglobin. These atypical red blood cells become rigid and sticky and are shaped like sickles or crescent moons. Early cell death causes a shortage of healthy red blood cells impairing the body’s ability to deliver oxygen to the tissues. Periodic episodes called crises, are caused by the blockage of blood flow, resulting in pain. There are five types of sickle cell disease – In HbSS, the patient inherits two sickle cell genes (“S”), one from each parent, is commonly referred to as sickle cell anemia, this is the most severe form of the disease. Other types include Hemoglobin SC disease, Hemoglobin SB+ thalassemia, Hemoglobin SB-zero thalassemia, Hemoglobin SD, hemoglobin SE and Hemoglobin SO. Symptoms usually begin in early childhood, and people with sickle cell disease have ancestors that came from sub-Saharan Africa, Mediterranean countries, Saudi Arabia, India or from Spanish-speaking regions in the Western Hemisphere. Sickle Cell Disease is also called HbS disease, Hemoglobin S Disease, SCD, Sickle cell disorders, Sickle cell anemia, SS disease and Sickling disorder due to hemoglobin S.

Our Health Equity Funds were developed to get assistance to those people and places who need it the most. Developed using the CDC’s Social Vulnerability Index (SVI) and CDC Disease Incidence data, our Health Equity Funds serve people living in 220 counties across the United States that have been identified by the CDC as having the highest social vulnerability scores and are burdened with high rates of chronic diseases. The Health Equity Funds are designed to specifically provide support to eligible patients living in one of the 220 counties covered by the funds, which is verified using the zip code of the patient’s home address. All other eligibility requirements, and fund operation, are the same as our general funds.

Medication & Financial Assistance Resources
The Patient Advocate Foundation's (PAF) Co-Pay Relief (CPR) Program does not review the information contained on the website links provided for content, accuracy or completeness. Use of and access to this information is subject to the terms, limitations and conditions as outlined on the accessed websites. PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided. The information presented on the PAF Co-Pay Relief website is provided for general information only and is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you acquire from this or any other website accessed through the PAF Co-Pay Relief program website.