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Thalassemia

Status
Identified

Approved and Donation Ready

This fund has been developed in response to patients who have contacted PAF for help with their medication expenses and could not find help. While this fund has been fully designed and we are ready to provide needed support to these patient communities, this fund is not yet able to accept applications for assistance as we are still working to secure charitable donations that will allow us to open it.

If you, or someone you know, would like to contribute to this fund, please visit our Donors page for more information on how to provide critical support for patients in need.

Fund Type

Co-pay, Co-Insurance & Deductible

Maximum Award Level

$12,000 Per Year

Eligibility Requirements
  • Household Income Requirements 400% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household)
  • Insurance Requirements All Insurance Types
  • Must reside and receive treatment in the United States.

About Thalassemia

Thalassemia is a group of inherited blood disorders, in which the body makes an abnormal form or inadequate amount of hemoglobin, the protein in red blood cells that carries oxygen. Due to the lack of hemoglobin, the red blood cells don’t function properly and last a shorter amount of time, so fewer healthy red blood cells are available to carry oxygen to the body. There are two main types of thalassemia: alpha thalassemia (caused by mutations in the HBA1 and HBA2 genes) and beta thalassemia (caused by mutations in the HBB gene), that refer to the part of hemoglobin that is not being produced, resulting in anemia. Thalassemia affects men and women equally; severe forms are usually diagnosed in early childhood and are lifelong conditions. Thalassemia is also called alpha-thalassemia major, thalassemia intermedia, Hemoglobin H-Constant Spring, Hemoglobin H Disease and Cooley’s anemia.

Medication & Financial Assistance Resources
The Patient Advocate Foundation's (PAF) Co-Pay Relief (CPR) Program does not review the information contained on the website links provided for content, accuracy or completeness. Use of and access to this information is subject to the terms, limitations and conditions as outlined on the accessed websites. PAF Co-Pay Relief Program makes no representation as to the accuracy or any other aspect of the information contained on any website accessed from the CPR website, nor does PAF Co-Pay Relief Program necessarily endorse the website information provided. The information presented on the PAF Co-Pay Relief website is provided for general information only and is not intended as a substitute for medical care. Please talk with your healthcare provider about any information you acquire from this or any other website accessed through the PAF Co-Pay Relief program website.
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